Aiming to bring clarity to long COVID, COVID vaccine injury, and related illnesses to help you on your journey
Have you or a loved one, your patient or your client had an infection or vaccination, and things haven't been quite right since? Maybe exercising is harder, exhaustion is constant, weird rashes are appearing, fingers are tingling, or thinking has become difficult (among many other things...). Are you unsure about what is going on, and struggling to find answers or make sense of things?
If so, Long Covid Scientific Consultancy aims to help!
There is a common perception that long COVID is a complete mystery. Whilst there is still much to learn, we know enough to (at least try to) improve many patients' lives. In my own journey, I remember frantically trying to find answers and getting constantly dismissed by doctors. Looking back, I wish I had some guidance from someone. This guidance is what Long Covid Scientific Consultancy aims to provide. I hope to support you in making evidence-based decisions on your journey...
When we were lost and being told we were imagining my daughters symptoms, Harriet spoke to us like sensible people and understood immediately the issues we were struggling with. Her advice both on the call and afterwards in report were extremely informative, accessible and relevant, and the detail meant we could bring her recommendations to healthcare professionals with confidence, successfully accessing treatments that had previously been denied to us
~ Rosie Maguire
I’m really happy to have found Harriet and her service.
Having been suffering for over a year and met with the usual blank from the NHS, I was getting most of my advice and info from Twitter. Even as a scientist myself, I was finding it difficult to sort the better evidenced treatments from the more wild experimental suggestions, and felt quite overwhelmed trying to figure out how or where to start....Harriet has a wealth of knowledge and patiently talked me through everything I needed to know with excellent clarity. I am feeling optimistic about finding ways to stabilise my condition and hopefully get a little bit of my life back. Thanks Harriet!
~ Felicity Alcock
When I was in the deepest pit of darkness, Harriet was the shining light I needed the most.
She was (and still is) a helpful, caring, knowledgeable and reassuring voice, helping to cut through the "possibly's", the "we don't know much about Long Covid", and the "have you tried talking therapy or antidepressants?" style of advice I was left with at the end of the NHS Long Covid service program (the NHS service I received was well meaning, but not as well informed as Harriet's advice to me).
Harriet offered me impartial, evidence-based, scientific options (with the associated risks) for managing Long Covid, so I could make my own decisions. She also helped me with the language to talk to my GP in a way that my concerns weren't simply dismissed, resulting in them agreeing to a particular treatment. This has made a dramatic improvement to my day to day LC symptoms, meaning I've been able to return to most of my pre-COVID activities. So I got the combined effects of:
Thanks so much Harriet, I'd rate your help at 100 stars out of 5 if I could!
Over the past few years I have spoken to and engaged with many medical professionals regarding the symptoms I have been suffering with and none of them have had the depth of knowledge and understanding that Harriet demonstrated. Harriet was able to analyse and breakdown my complex history and symptoms into rational explanations and suggest avenues of treatment and testing that hadn’t been considered while the detailed report that she wrote for my GP has provided much needed clarity and insight. Thank you Harriet.
~ Anita Robertson
Harriet knows her stuff!
She does not go outside her appropriate lane. She was really thorough and made some suggestions that have really helped....
Not a minute of this consultation was wasted! So grateful for your knowledge and time
If you’re a long COVID or vaccine injured patient or carer, you may be feeling abandoned or gaslit by your healthcare provider. You may be left believing there is literally nothing that can be done to help. Alternatively, you may have done so much reading that you are overwhelmed and don’t know where to start.
If this sounds familiar, Long Covid Scientific Consultancy aims to help. This is not a protocol, but a way to navigate the science so you can make evidence-based decisions as best as possible. Although I cannot guarantee answers, this service aims to bring some clarity to patients and carers who need it. Long Covid Scientific Consultancy hopes to help you on your journey, so you are not alone, and you have some guidance along your way.
If you are a healthcare professional who goes out of out their way to find answers for their long COVID or similarly complex patients, Long Covid Scientific Consultancy aims to help.
Unfortunately, clinical guidelines are often far behind the evidence. Long Covid Scientific Consultancy aims to provide information on what kind of tests and diagnoses might be useful to explore, along with providing relevant (UK) guidelines where applicable.
If you are a personal trainer, massage therapist, nutritionist, or other health and wellbeing provider, you will inevitably have clients with long COVID or similar. However, some intuitive things like getting back to exercise can be harmful in some patients.
Long Covid Scientific Consultancy aims to inform you of the various considerations for these clients.
Whilst each patient is different, there are some common diagnoses that keep cropping up. You can read about these and find resources (e.g. clinical guidelines, charities) in my blog...
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