Many patients, doctors, and other health professionals are left without evidence-based information. Long Covid Scientific Consultancy aims to rectify that. For example, there are tests that can be done at home which validly show the nervous system is not working properly. This information can be useful to help monitor progress, and ideally doctors would take the information seriously, spurring treatment or a referral.
Equally, lots of patients and health professionals encourage exercise, but this may be doing more harm than good. The long COVID space is full of ideas and protocols which can get overwhelming. Long Covid Scientific Consultancy aims to help make sense of it all so patients and others can make evidence-based decisions.
Basically, if you have questions about long COVID or similar, Long Covid Scientific Consultancy offers you the opportunity to ask an active researcher (who has lived experience) in the field.
My research has focused on long COVID and long COVID-like vaccine injuries, particularly focusing on the role of COVID-specific things like the spike protein. Therefore I feel long COVID is the area I have expertise in. As long COVID and long COVID-like vaccine injuries often incorporate many pathologies, such as microclots, ME/CFS, MCAS, and POTS (etc), I am happy to discuss these even if they were not caused by COVID or the COVID vaccine. However, there may be some differences and nuances I am less familiar with in these cases. We can discuss whether this service is right for you.
No. Long Covid Scientific Consultancy is not selling or promoting a protocol. I believe every patient is different and no single protocol will help or cure everyone. This service aims to help patients and others understand the growing evidence regarding long COVID and similar illnesses. I can give the evidence behind products and protocols, and I can support you in testing different products and/or protocols you are interested in, but this should not be interpreted as an endorsement of the product and/or protocol.
A patient report aims to summarise our discussion. Depending on what we discuss, this might include:
This can be helpful so we can engage in discussion and you do not need to worry about note taking, which can be particularly useful if you have cognitive problems, like brain fog. I might also add in extra thoughts that come to mind whilst preparing the report.
Although the report is for you, you may wish to take it to your doctor or medical team, or have another purpose in mind. I cannot guarantee they will do anything with it but it might give them some direction regarding what tests might be useful to rule in or out possible diagnoses. As you may have a particular purpose in mind for your report, please let me know if there is specific information you want included. I am happy to tailor these to suit your needs, providing I believe they are an accurate representation of your situation.
A patient report costs an additional £25 (or and extra £5 per head for group reports) and will be invoiced separately, so you do not need to decide if you want one until we have our consultation.
For healthcare professionals and other health specialists, a report is included in the price. This will be less tailored than patient reports, with a heavier focus on things like clinical guidelines that can be useful.
No. I am not a medical doctor and therefore do not give medical advice or write prescriptions. This is a scientific advisory service only and does not give medical advice. I cannot diagnose, I cannot prescribe medications, and I cannot recommend treatments. We can discuss ideas that you are interested in, and I can signpost you to guidelines and tests, but any treatments should be under medical supervision. This service does not constitute as medical supervision.
We can discuss the pros and cons of medications, when they may be more or less helpful, etc, but this should not be interpreted as medical advice or a recommendation/endorsement. We can discuss interpretations of test results but this should not be construed as any form of diagnosis. Only licenced healthcare professionals should provide medical advice and prescriptions.
Please don't worry! I understand this disease is unpredictable. Please email me as soon as possible to let me know. The choice is then yours:
This same policy applies to healthcare professionals and other health specialists too, and is highlighted on our legal stuff page.
Yes. I understand problems with light and sound sensitivity, as well as the energy cost of appointments like this. Please make yourself comfortable. For example, you may wish to wear sunglasses, lie down, and/or have the cameras off. You do not need to explain yourself to me!
If speaking is a problem, please email me and we can have an email consultation where I will send you some questions and you can reply in your own time. I am obviously limited in how else to help in such situations, but open to ideas. Please let me know if there's something I have not considered that would be helpful.
Children should not be forgotten in this pandemic. I am happy to discuss children's cases though my expertise is with adults. This means I may be more likely to need to consult others to advise safely and appropriately. This will require extra consent to share health information; we will discuss if this is needed and any data will remain confidential unless consent is given to discuss with others.
In Scotland, under data protection laws, children aged 12 years and over must provide consent to handle their health data, if they are capable of doing so. Parents/guardians can book an appointment and complete the consent form on the booking page, but I will ask children aged 12 years and over for consent to process their data at the beginning of the appointment. Please make sure they are available to do this even if they do not stay for the full appointment.
Children (i.e. those under the age of 18 years) must be accompanied by a parent or guardian in our consultation, but parents/guardians can represent the child alone once consent has been established.
Standard appointment times are on Tuesdays and Fridays between 1-7pm (UK time zone). If this is not suitable for you for any reason, please contact me and I am sure we can arrange an alternative.
I hope to be able to offer limited pro bono consultations in the future, but first I need to ensure the business is financially viable and I can properly pace my energy.